BUTTERFLY CHILD #Book to raise awareness of #Epidermolysis Bullosa (EB) #Children…

Hello Chris and Friends! 

I’d love to take a moment to share a special journey with you.

I am working on my third children’s book, but this one has added meaning.

It’s a story that I hope will raise awareness about a rare skin disease called Epidermolysis Bullosa, or EB.

Children with this devastating condition have very fragile skin that blisters daily.

murrayapril2015-191 (1)

They are known as the butterfly children because their skin is as delicate as a butterfly’s wings.

I’ve written a story, called BUTTERFLY CHILD, to honor the bravery and strength I see in children with EB.

Butterfly Image Scene

Now, I need your help to bring the book to life.

I’ve launched a Kickstarter campaign to get BUTTERFLY CHILD published.

By donating to the campaign supporters can receive different rewards like paperback and hardcover copies, or even get a child’s name written secretly in an illustration.

Just click on the link below for more details. 

(FYI, right now I don’t have international shipping set up for the campaign rewards, but could add it if anyone needed it.)


Thank you for reading this! I really hope this campaign succeeds and gives the EB community some much needed attention.


Ali PfautzThe Story Lady

Ali Pfautz

Author of


NMSSS          SaW

21 thoughts on “BUTTERFLY CHILD #Book to raise awareness of #Epidermolysis Bullosa (EB) #Children…

  1. Reblogged this on Smorgasbord – Variety is the spice of life and commented:
    However busy we all are I doubt any of us would mind spending just a few minutes clicking share buttons to help get this book up and running.. On The Story Reading Ape’s blog and it is aimed at raising awareness for children suffering from the painful and devastating #Epidermolysis Bullosa. Let’s help Ali Pfautz out.

    Liked by 2 people

  2. Go Ali! You are such a gracious and generous author. It’s amazing to see the great things you are doing. When I was teaching 6th grade, two of my students (twins) were living with this painful condition. Butterfly Child is certainly a fitting metaphor for their fragility as well as their strength. I wish you the very best with your project!

    Liked by 2 people

    • Wow, Michelle… twins with EB!? So difficult for them and their family, yet I bet they were bright lights in your classroom. I’m amazed at how brave these children are despite the pain! Such inspirations!

      Liked by 1 person


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