Hello Chris and Friends!
I’d love to take a moment to share a special journey with you.
I am working on my third children’s book, but this one has added meaning.
It’s a story that I hope will raise awareness about a rare skin disease called Epidermolysis Bullosa, or EB.
Children with this devastating condition have very fragile skin that blisters daily.
They are known as the butterfly children because their skin is as delicate as a butterfly’s wings.
I’ve written a story, called BUTTERFLY CHILD, to honor the bravery and strength I see in children with EB.
Now, I need your help to bring the book to life.
I’ve launched a Kickstarter campaign to get BUTTERFLY CHILD published.
By donating to the campaign supporters can receive different rewards like paperback and hardcover copies, or even get a child’s name written secretly in an illustration.
Just click on the link below for more details.
(FYI, right now I don’t have international shipping set up for the campaign rewards, but could add it if anyone needed it.)
BUTTERFLY CHILD
Thank you for reading this! I really hope this campaign succeeds and gives the EB community some much needed attention.
Smiles,
Ali Pfautz, The Story Lady
Author of
NO MORE SLOOPING, SARA SUE! and SMILES & WIGGLES
Chris The Story Reading Ape's Blog 
À beautiful way to share your message, Ali. 🙂
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Reblogged this on BOOK CHAT and commented:
Help raise awareness for EB or Epidermolysis Bullosa, a devastating and rare skin disease by clicking on the links in this post.
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Thank you Michelle 😃
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Such a worthwhile cause… Shared on all my SN pages 🙂
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Many thanks Tina 😀
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How beautiful.
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Reblogged this on A place to write, read, discuss and explore the literary world. and commented:
I just had to share this. Click on the original article to go to Chris’s site and find out all about Ali Pfautz’ campaign to bring the Butterfly Child to life and raise awareness about children with the rare skin disease, Epidermolysis Bullosa (EB). Thanks 🙂
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Many thanks for spreading the word Mel 😍😍😍
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It’s my pleasure, Chris. Thank you for sharing the information 😀
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Thank you so much for reblogging this! They call it “The Worst Disease You’ve Never Heard Of,” but with help from folks like you, that could change! Thanks!
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It’s my pleasure 😀
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Reblogged this on Michelle Eastman Books and commented:
Ali is an author I came to know when she donated books to children of incarcerated parents via my #MARCHingBookstoKids drive. Now, she is using her talents to raise awareness for children living with a painful medical condition.
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Thank You for spreading the word Michelle 👍😃
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Thanks, Michelle! I really hope we can get EB some added attention out there!
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Reblogged this on Smorgasbord – Variety is the spice of life and commented:
However busy we all are I doubt any of us would mind spending just a few minutes clicking share buttons to help get this book up and running.. On The Story Reading Ape’s blog and it is aimed at raising awareness for children suffering from the painful and devastating #Epidermolysis Bullosa. Let’s help Ali Pfautz out.
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Many thanks for spreading the word Sally – Hugs 😃😍😍😍
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So true… it just takes a moment to share and hopefully grab some atttention for EB families! Thank you for the reblog!!
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Happy to help Ali.. good luck with the project.
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Go Ali! You are such a gracious and generous author. It’s amazing to see the great things you are doing. When I was teaching 6th grade, two of my students (twins) were living with this painful condition. Butterfly Child is certainly a fitting metaphor for their fragility as well as their strength. I wish you the very best with your project!
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Wow, Michelle… twins with EB!? So difficult for them and their family, yet I bet they were bright lights in your classroom. I’m amazed at how brave these children are despite the pain! Such inspirations!
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