Hello Chris and Friends!
I’d love to take a moment to share a special journey with you.
I am working on my third children’s book, but this one has added meaning.
It’s a story that I hope will raise awareness about a rare skin disease called Epidermolysis Bullosa, or EB.
Children with this devastating condition have very fragile skin that blisters daily.
They are known as the butterfly children because their skin is as delicate as a butterfly’s wings.
I’ve written a story, called BUTTERFLY CHILD, to honor the bravery and strength I see in children with EB.
Now, I need your help to bring the book to life.
I’ve launched a Kickstarter campaign to get BUTTERFLY CHILD published.
By donating to the campaign supporters can receive different rewards like paperback and hardcover copies, or even get a child’s name written secretly in an illustration.
Just click on the link below for more details.
(FYI, right now I don’t have international shipping set up for the campaign rewards, but could add it if anyone needed it.)
Thank you for reading this! I really hope this campaign succeeds and gives the EB community some much needed attention.
Ali Pfautz, The Story Lady